I'm a grownup created with physical ailments that trigger my body to still require pediatric sized medical equipment. I've had all my medical professionals at Childrens Hospital Boston since 1968.
In May 08 I visited Kids Hosp Bostonis IM with adominal pain from what wound up being truly a knotted-up lower bowel obstruction.
I had been in severe stress, projectile vomiting, doubled around in discomfort, pleading this clinic to assist me, while Youngsters' identified after which left me against me and my people needs on another clinic next door from their store without any childsized gear.
The person clinic and doctors instantly begged Chidrens to take-me back again to do my emergency surgery simply because they had no encounter with my ailments and had none of the best sized gear or team educated to impliment pediatric measured health care but Kids nevertheless declined.
As a result of this scenario I'd my nose damaged by adult-sized pipes, neck-spinal injury in the endo tracheal tubes being too large to suit along my neck, PTSD from needing to be intubated conscious without any sedated.
Kids guaranteed conversation, and my health background using the person hospital-but just supplied one chest xray, unanswered paging, voice emails, that delayed my declining body in the surgery I required for many several hours.
Since The person clinic had no pediatric measured gear body examination, blood pressure, foley catheters etc fundamental healthcare wasn't feasible. I had been run on impaired to be ready to obtain the pre-op body examination every individual requirements for secure anaesthestitia, body writing, clotting, etc. The doctors needed to reduce my crotch available to obtain the body they required from an artery after-life threatening surgery was happening.
By-God's can I lasted however now have neglected extra medical issues in the experience to be hurt in a health care setting unequiped to deal with my sophisticated requirements.
Adding insult to damage Kids Hospital Boston has since rewritten my health background to create me seem written down not to will be in any discomfort or medical stress during their IM May 08 and transformed my impairment abruptly in the toddler onset they will have handled since 1968 right into a imaginary 'adult-onset'.
This unexpected doc change has become creating me setbacks in medicaid addressing my already-existing important everyday health care since written down I actually donot come in accurate need of youth impairment and also the complicated treatment requirements caused by it.
I've approached Kids to repair their problematic certification of my documents however they continue to be moving about the dollar nearly annually later.
If anyone here might help me discover advocacy, justice, and methods for getting this clinic from leaving additional individuals like myself please email me at [email protected]
I am not searching for cash. I am prepared to proceed public to boost consciousness with this problem.
I'd like the planet to become conscious of the damage that may occur to individuals with delicate health conditions who require pediatric measured medical configurations no real matter what era they stay to become.
An individual shouldn't need to be injured or die since their body remained little while they've existed on beyond age 22.
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